Life with Arachnoiditis: Education, Research, Support & Hope
Arachnoiditis, Epidural Fibrosis, Failed Back Surgery Syndrome &
Related Spinal Disorders
Copyright & Non Profit Organization status in process


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Cofounder - Cindy Hellman - Page Two

 

Cindy's Journey - continued

When the conservative treatments failed, I saw an orthopedic surgeon.  He convinced me I needed surgery.  After a horrible experience with a discogram, in which the dye invaded the thecal sac/dura, I continued my downhill experience of never ending back pain and nerve problems.  In 1991, I had a posterior lumbar fusion with autograft bone from my hip and a laminectomy.  About two months after the surgery I fainted from a standing position due to an IBS attack and my blood pressure bottoming out and I broke my coccyx.  The fusion never had a chance to heal since I ripped it apart when I fell.  Since this surgery failed, I was put back under the knife 4 months later for an anterior interbody fusion using a cadaver bone, hardware, and a discectomy.  After the second surgery, I was never the same, only much worse than I had ever been before any surgery or invasive procedure.  My doctor invaded the dura/spinal area and further advanced my Arachnoiditis.  During my first surgery at age 28, when my surgeon opened me with about a 12 inch incision, he said I had the spinal arthritis of a 90 year old.  So that makes my back aged to the point of 107 right now at my ever so young age of 45.  My surgeon never admitted to making a mistake during the surgery, but managed to put in an unplanned and unnecessary screw that obliterated all the MRI pictures taken after the surgery so that the slice into the spinal nerves and the CSF leak was not caught.  

Eight months after my surgeries in 1992, my surgeon sent me to a specialist to see if he could find out why I was getting worse when it appeared my fusions were solid.  The specialist diagnosed me with Arachnoiditis.  After telling my surgeon what the specialist said, my surgeon became very angry and defensive at the diagnosis and told me; I didn�t have it and to forget it because he didn�t do anything wrong!  I trusted and believed in him and I did ignore the diagnosis, for 16 years.  Upon my own investigation this year, searching for any type of help for my pain and ailments, I remembered the Arachnoiditis diagnosis from 16 years earlier and went to an Arachnoiditis specialist in 2008 and had the formal diagnosis of Arachnoiditis confirmed and many other problems diagnosed I did not know I had.  

Click Here to Continue Reading Cindy's Journey

Life with Arachnoiditis: Education, Research, Support & Hope
Arachnoiditis, Epidural Fibrosis, Failed Back Surgery Syndrome & Related Spinal Disorders
Copyright & Non Profit Organization status in process
Temporary Mailing Address:  P O Box 1202, South Fork, CO 81154